Please visit http://www.anencephalie-info.org/e/index.php if you would like more information on this condition.
This is the story of my family's journey through pregnancy and infant loss due to anencephaly, triploidy, and trisomy 13, starting with our our son Peter Benedict, who died in 2012. This is our journey through love, grief, loss and healing.
What is anencephaly?
Anencephaly is a congenital birth defect that occurs in approximately one in one thousand pregnancies. It is a neural tube defect, just as is spina bifida. At approximately 28 days after conception the neural tube is supposed to close. When the top fails to close, the skull is left open and the brain doesn't properly form. Life expectancy for a baby with anencephaly after birth is just a few hours, sometimes a few days at most. And many don't make it to term, either because of stillbirth or miscarriage, or more commonly, abortion.
Please visit http://www.anencephalie-info.org/e/index.php if you would like more information on this condition.
Please visit http://www.anencephalie-info.org/e/index.php if you would like more information on this condition.
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